Home > Rockinpaddy > #‎30JuneILFcloses‬: 6 days till closure

#‎30JuneILFcloses‬: 6 days till closure

#‎30JuneILFcloses‬: Today I’m working in the studio, trying to concentrate on my job, making and facilitating others to make music.  Excited about some schools work coming up! #SaveILF

I need to get a few myths busted before I do though.  ILF is not a benefit and so not part of the benefit cuts debate, its being pushed that way so the government can blurt out its rhetoric about its abhorent behaviour.  I do not pocket the money for myself, every penny is to support me to employ a brilliant team of PA’s to provide all the support I need to live and manage independently.

Independent Living is not about care (of course there is a relationship/cross-over) see the footnote below.

It is emerging that there is a view that I/we are somehow scaremongering about what is happening. That disabled people not on ilf are being ‘cared for’ (again footnote, this isnt about care) within the system fine. Believe it or not, I think about every action very carefully for that very reason.  Are my feelings justified/objective/considered.  A major part of my job involves building confidence of young disabled people to get out there and live the dream, so the last thing I would want to be doing is scaring people. The honest reality of what is happening is I don’t know what will happen and thats surely enough to say I want to hold on to somethng that works until I do know what will be in its place? I do know this closure has already created a postcode lottery with local authorities all doing different things. I do know my mail has increased from dsabled people up and down the country saying their local authority is cutting their package, cutting sleep overs, suggesting wearing a pad is an acceptable way of dealing with toileting overnight.

I’m proud to have been a collective of disabled people localy to have set up an oganisation supporting Independent Living.  The case load of this one organisation, suggests different from the governments rhetoric that the system is fine and that it will cope with us (assessed as having high/severe needs), the evidence doesnt stack up. So maybe the feeling of being a bit scared at the moment is justified by the “real lived experience of what is happening” and not by our making?

Ok time to focus on music, I’m feeling low today, worried about the impact of all this fighting on my work/life bank balance.

Thank you to everyone (over 500 messages yesterday) who supported me yesterday. In fairness our shouting was perhaps a bit more real and genuine, perhaps a little less nonsense than the ego-trip, career stepping (some MP’s/ministters/nt all) shouting going on in the chamber. Those Para games certainly has helped us develop our sprint speed and team work ay Sausages! Right….music….save me…and the ILF if ya can!


Thats Independent Living – The right to make decisions over what is important to you; Choice; Control;  Equality; A Human Right;  Autonomy; Having true quality of Life;

Please do share link or #Retweet or fb share #30JuneILFcloses blogs if ya fancy, ta sausages xx

Please do sign the petition if you feel strongly about this, your signature does make the difference: https://you.38degrees.org.uk/petitions/defend-disabled-people-s-right-to-independent-living

  1. June 25, 2015 at 17:42

    Reblogged this on dainagregory.

  1. No trackbacks yet.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: